It's been some time since I filled you guys in on my amazingly unfathomable necrotic, skin-eating disease (which has thus far stumped my regular doctor, a dermatologist, several nurse practitioners, a legion of allergists, and my UPS guy {Hey, he had "Resting Therapy Face."}). And the ensuing human lab rat "study" that my allergist talked me into enrolling in for an experimental drug. (For all the horrific details, refer back to my older post. I'll wait right here until you're done reading.)
So, between being turned into a human pin cushion by sadistic nurse Carla (I kinda think she might have been blind whenever she tried to find my veins on a weekly basis), and then having two--count 'em, two!--mystery drug infusions, I still have my incomprehensible series of rashes. Oh sure, after the first infusion, I was miraculously healed up! Hallelujah! For about three weeks, then the itchiness and bumps came back with a vengeance. I suffered until the next infusion, hoping for the best. Again, it healed my skin, but this time for only a week.
Despondent, I asked the fresh-faced, fast-talking, hipster-slang-slinging, straight outta diapers research kid, Darren, what happens next.
Darren shrugs and says, "That's it. Now they want you to lay off any kind of drug that might help you for eight weeks."
"Eight weeks?!!? But...but...lookee!" I pulled my sleeve up to show him a gruesome run on my arm. "How am I gonna hold out for eight weeks?"
Another shrug, this time accompanied by a sly grin. "I know, right? It's kinda crazy."
Well, "crazy" doesn't supply relief. Don't get me wrong, the allergists never did cure my ailment, but at best, they were able to mask the symptoms with a succession of drugs (at least for a little while) by applying kindly Dr. Mr. Rogers' "throw-it-all-against-the-wall-and-see-what-sticks" methodology. Highly scientific. But, hey, I was desperate for relief. Even though a constant diet of Prednisone had turned me into the Michelin Tire Man.
I went home and suffered for another couple of weeks until I'd finally had enough and pulled the plug. I felt guilty, like a namby-pamby quitter, but to me it was unfathomable to sit and suffer for another six weeks for no particular reason. On the bright side, I wouldn't have Nurse Carla digging into my arm every week, spelunking for gold or whatever. Bonus!
So, I launched into my apology tour. Kindly Dr. Mr. Rogers was compassionate and kind (just like his late TV namesake), of course. But then he hit me with some insanely bad news.
"Unfortunately, your last blood test showed some truly weird anomalies in your blood. The drug development company would still like to monitor your blood work."
"Wait.. What?... WHAT?"
"Your blood work showed something really strange..." While he went on to explain it in boring scientific bla-bla-bla that I wouldn't understand anyway, images of a creepy, maniacally laughing, giant Nurse Carla coming at me with a bazooka sized hypodermic with a needle the size of a bayonet burned into my brain.
"...and while I don't *think* (inserted finger quotes) you're dying, everyone thinks it'd be best if we continue to draw your blood for the next couple of months and--"
"Dying? Wait...what? What's wrong with my blood??? TELL ME DOC!"
"It's just a weird anomaly that we've never seen before, but there's no need to panic. They just want to make sure--"
"YOU'VE NEVER SEEN IT BEFORE??? WHAT HAVE I BECOME?"
"There, there..." I barely felt his lame pat of condolences on my back. "Nothing to worry about, it's just--"
"AND IS CARLA STILL GONNA DIG INTO MY VEINS???"
"Hang on just a second." Suddenly, kindly Dr. Mr. Rogers zips out of the room and zips back in with a very inquisitive young woman. She introduces herself as the new nurse practitioner and starts questioning me about...well, everything.
Kindly Dr. Mr. Rogers finally says, "Well, she just wanted to see you. At first, based on your blood work, she thought I'd made you up. That there was no way you could be alive."
"Wait...I SHOULDN'T BE ALIVE???"
"There's nothing to worry about. We just--"
"BUT THAT'S NOT WHAT YOU SAID! ALL I WANTED TO DO WAS QUIT THIS STUPID STUDY AND SUDDENLY I'M DYING!!! I'M NOT EXACTLY INSTILLED WITH CONFIDENCE NOW!!! I JUST--"
"There, there, there. Nothing to worry about. We just bla bla bla..."
This went on for a while. And I STILL didn't get what was up with my blood. However, after two further months of Nurse Carla jackhammering at my veins, the "anomaly had cleared up."
Now calmed and relieved, I had one more stop to make on my apology tour, this time to Darren, research whiz kid.
Grinning oddly, Darren mumbled something nearly indecipherable. Either that, or I pretended not to hear what he said, the horrors just too much to process.
"What? I'm sorry, I didn't get that."
"I can get you into another study," he repeated, still grinning like he knew a very special, fun Big Boy secret.
"Great GOOGLY-MOOGLY! You gotta be kidding me! Why in the WORLD would I ever consent to doing another one of these??? The last drug turned me into some kinda weird-blooded, 50's sci-fi monster and didn't even work! Then having Carla use me as a voodoo doll every week is just--"
"We'll pay you."
"Okay."
(Stay tuned for the further adventures of "Stuart, World's Worst Human Lab Rat!")
While we're chatting about colossally stupid decisions, my short story collection, Twisted Tales from Tornado Alley, is full of people making them. There's the cranky old woman who decides to battle three demonic children on Halloween. Hey, there's the young woman who decides to go underground--deep, deep, dark underground--in search of her missing brother. How about the man who believes his wife is cheating on him, so decides she must die? The list goes on and on. If nothing else, my protagonists should make you feel pretty good about even your worst life decisions! (If that's not a Must-Read plug, I don't know what is!) Check it out here.
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